A experiência da doença renal crônica para o adulto jovem em hemodiálise: uma perspectiva cultural.

Abstract

The chronic kidney disease, together to physical alterations, results in psychological and social losses, constituting itself in a problem to who experience and to society, once it interferes in the social role that the carrier of this condition develop. The dependency of people and equipment, due the chronic condition and the treatment, imposed by kidney disease, makes that the hemodialysis gets a special place in these people’s life, once this needs being adapted according to the therapeutic routine, changing every day. This study aimed to understand the experience of young adult with chronic kidney disease in hemodialysis. It was performed a qualitative research, exploratory and descriptive, being a sub study from the research: “Families in the presence of chronic kidney disease: interfaces of care”, coordinated by the Teacher, Nurse, PhD Eda Schwartz. Participants of research were eight young adults in hemodynamic treatment from a system of nephrology in the city of Pelotas, Rio Grande do Sul. Data collection occurred in the months of June to August of 2013, at home and/or in the service of nephrology of the hospital Santa Casa de Misericórdia de Pelotas. The instruments used were: narrative interview and systematic observation recorded in a journal of field. This study was approved by the Committee of Ethics in Research of the Hospital Santa Casa de Misericórdia de Pelotas, under the number of protocol 195/2013. Analysis of data was based in the proposal of Minayo. As results, were constructed the follow Unities of Sense: The living of young adult before the chronic kidney disease and the social expectations; The trajectory of the young adult with chronic kidney disease, which was subdivided in: Body Disorder – first symptoms of chronic kidney disease; Kidneys has withered - the diagnosis and treatment time; Prize and/or punishment – the impact of discover yourself with a chronic kidney disease; Am I not have options? The necessity of hemodialysis; Living with/the chronic kidney disease and the hemodialysis and, lastly, Between the hope(less), fears and freedom – the future perspective. Young adults of this study performed their story with a chronic kidney disease and the hemodialysis, once the narratives showed that each one lived this process in a singular way, despite some similarities, which can have been highlighted because they were in a historical similar moment, age and condition of life.