Experiências do cuidador familiar da criança em tratamento conservador renal no sul do Brasil

Abstract

This study aimed to understand the experiences of the child's family caregiver in renal conservative treatment in southern Brazil, this is a qualitative descriptive study, developed after approval of the Ethics Committee of the Nursing School of the Federal University of Pelotas under number 985 770. Family members were included characterized as primary family caregivers of children who were in renal conservative treatment in a pediatric clinic in the city of Pelotas. Data collection was conducted from April to August 2015 through semi-structured interview. The location of interviews was defined with the participants, mostly in their homes. They were built with family caregivers the genogram and eco-map. Attended by 11 family caregivers, all female, white self-declared, children's mothers, most residents in urban areas, married, Catholic, with completed elementary school, have unpaid professional activity and receive assistance disease. Most children are female, white, lies in urban areas, are in the third stage of child development cycle, do not attend school and have siblings. They are in renal conservative treatment from 2 months to 11 years and the main causes of kidney disease were urinary tract malformations and glomerulopathies. The interviews allowed the construction of five categories named as: Discovering the disease; Living life by the child; Dealing with the disease; Realizing the health of children; Realizing the support. It was found that the transformations that occur in the life of caregivers are linked to changes in affective, social, professional and economic. Final thoughts: Faced with the need for guidance family caregivers, nursing can contribute to the family empowerment by promoting their involvement in decisions involving the health of children with kidney disease.